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Our summer turned out to be nice, though.
First of all, I did end up finding child care. It was somewhat sporadic, but I took what I could get and that certainly helped my sanity.
The week after school let out, I bought my son a 1-year pass to our local Monkey Town, which if you're not familiar, is an indoor playground. We spent many an afternoon running around together in Monkey Town, playing with colored balls, and going down slides. He even climbed up one, which I was super-impressed by. It was only about 4-5 feet long, but still.
We also went on many leisurely walks—to a park near our house, for example, where we watched the ducks and played at a playground.
We had fun playing in the rain one day.
At home, we played with trains and read books.
And at the end of July, we flew to Munich, Germany. (As a side note, I recently wrote a post on tips for flying with your disabled child.) We spent a week there with my parents and brother, and had fun visiting the Neuschwanstein Castle...
|being carried by Grandpa|
|pushing a button to make the hot air balloon go up|
|building a track with Daddy|
- Our mornings were usually relaxed. There was no morning get-ready-for-school rush or travel back and forth to school.
- We had a 6-week break from all therapies: physical, occupational, and speech. While I appreciate the advice I get from my son's therapists on how to help him at home, it can sometimes feel overwhelming, so it was nice to have a break from that. I'm sure my son was also happy to have a break from therapy. It's hard work!
- No therapy over the summer meant fewer therapy bills to pay!
- This is the first summer where I've really gotten to just enjoy my son. He was born 12 weeks prematurely, and his first full summer I spent taking him to lots of doctor and therapy appointments and fiercely protecting him from respiratory illnesses (because with his prematurity came chronic lung disease, which put him at increased risk of respiratory infection and rehospitalization). His second full summer was right after we moved to the Netherlands, so we were busy settling in. His third full summer, we moved to a different house in our town. Finally, this summer I was able to focus more fully on Oliver—on playing with him and helping him grow.
|riding the train home on his 1st day of school|